A couple of Sundays ago, I was talking to the daughter of a beloved parishioner who died of ALS. She reminded me that it had been eighteen years since he had passed. Eighteen years! I won’t bore you with tired aphorisms about time flying, but man, did that surprise me. It was only a few years later that we found the Tri-State Trek and started to raise money to combat ALS. So, we’ve been doing this a long time now.
Through that long stretch, despite the tremendous support we’ve received from the parish, and the many thousands of dollars we have raised, we’ve continued to have to report that ALS remains a horrible disease stubbornly resistant to cures and treatments. But we are happy to report that this year is different. ALS-Therapy Development Institute has announced a new drug, Tofersen, has successfully completed FDA approval and significantly slows the decline of respiratory function and strength and improves quality of life. More clinical trials are underway, so it seems a pipeline of hope is on the way.
But no reason for complacency! That’s why your favorite cycling group, Team Epiphany, is at it again. We’re hopping on our trusty two-wheelers to continue the fight against this horrible disease benefiting the ALS-TDI. They’ve changed the format this year, and we’ll be attempting various distances. During the weekend of June 24-25, your team will be looping around Durham, NH, completing distances between 30 and 200 miles. And so, once again, we ask for your support:
- Please navigate to https://tst.als.net/fundraise/?t=500048 and make a pledge. We hope to break our record on fundraising. It will also show you who’s on the team and what they’ve signed up for. Sponsor your favorite rider or the team at large. It’s all good!
- You could join the team. No, I’m not kidding. There are many ways to participate, both in person and virtually. We’d love to swell our ranks — https://tst.als.net/the-ride/participation-options/. Not a cyclist? Doesn’t matter, you can participate virtually walking, running, or doing any kind of exercise.
- Pray for us. We will be training heavily between now and then. We’d especially like your prayers for the safety of all riders and volunteers on the weekend of June 24-25.
ALS has hit this parish hard over the years, and we ride in honor of our fallen friends, Steve Lewis and Rick Marks. Yet, we know there are lots of pressing needs in the world so we thank you in advance for considering supporting us.
In the meantime, stay safe and well and have a blessed Eastertide.
~ Team Epiphany